This is my brief submission to the consultation:
1. What do you think should be included in the National Disability Strategy?
People with disabilities ONLY. NOT Carers, Families or Service Providers
2. What are the barriers to people with disability fully participating in the community?
Carers, Families or Service Providers
Lack of Access to:
- the Built Environment
Chronic Unmet Need in Support Services and Equipment
Societal misconceptions and discriminatory attitudes
3. What have been some of your own experiences?
As a person with a disability WITHOUT a Carer or Family I am sick of being ignored and becoming invisible because of the focus on Carers and Families.
4. What local and national actions could be taken to overcome these barriers?
Just provide what WE need. Concentrate on People with Disabilities themselves. We are not attached to other people as adults nor should we be. While some of us rely on other people we can provide for carers etc (if we have them) if we are paid an allowance to pay such Carers etc. Those who are cognitively unable to manage their lives themselves usually have (or should) a LEGAL representative (who may be Family if so chosen) to enable this. All carers or families who are supporting people with disabilities who are over the age of 18 and cognitively unable must be required to have legal guardianship or administrative authority to speak and act for the PwD that they are assisting. “Care” should not be assumed or assessed by a GP or Centrelink or Gov Medical Officer. Some carers, families actually abuse, control and deny. Application should be made and granted through Guardianship Boards.
5. What areas of research should be a priority for the NDS?
People with Disabilities themselves should be the ONLY priority. Carers etc should have their own Strategy to address their needs if really necessary. However this should not be necessary if we PwD, are given the means to provide for Carers (see Q 4)
6. What local action has made a positive difference to people with disabilities?
Just provide what we need. Stop treating us like second class citizens. Simple really.
7. Anything else?
Until we (PwD) are recognised as individuals in our own right we will never be able to be truly free and independent contributing members of society. NO OTHER MINORITY is forced into such dependence or control by others as adults. For crying out loud stop forcing us into dependence and poverty.